REFERENCIAS BIBLIOGRAFICAS

1. Moreno B, Ximénez C. Evaluación de la calidad de la vida. En: Buela-
Casal G, Caballo VE, Sierra JC (Eds) Manual de Evaluación en Psicología Clínica y de la Salud. Madrid: Siglo XXI, 1996, 1045-70.

2. Blanco A. La calidad de vida: supuestos psicosociales. En: Morales JF (Comp). Psicología Social Aplicada. Bilbao: DDB, 1985.

3. Grau J. La Psicología de la Salud en los albores del siglo XXI.
Conferencia magistral a la I Reunión de Psicología de la Salud en el en el Occidente de México, Guadalajara, enero/1995.

4. Ferrell B, Wisdom Ch, Wenzl C. Quality of life as an outcome variable in the management of cancer pain. Cancer 1989; 63:2321-27.

5. LeninVI. Medical Nemesis: the expropiation of Health. NY: Pantheom, 1976.

6. Tolstoi L. The Death of Ivan Ilych. NY: Penguin, 1960.

7. FranklV. Man's search for measuring.NY:Simon and Shuster, 1984.

8. Bech P. Quality of life measurement in chronic disorders. Psychotherapy and Psychosomatics 1993; 59:1-10.

9. Friedman HC, DiMatteo RD. Health Psychology. London:Prentice Hall, 1989.

10. Reimel Sh, Muñoz C. Un modelo conceptual para la medición de la dimensión psicosocial en la evaluación de la calidad de vida. Comportamiento, Univ. Simón Bolívar, 1990; 1 (2):51-9.

11. Batista-Foguet JM, Artés M. Actitudes y calidad de vida. En: Alvarez Alvarez M(Comp) Propuesta de un sistema de indicadores sociales de igualdad entre géneros. Madrid: Ministerio de Asuntos Sociales, 1994, 335-74.

12. Hollandsworth JG. Evaluating the impact of medical treatment on the
the quality of life: a 5-years update. Soc Sci Med 1988; 26:425-34.

13. Michalos AC. Global report on students well-being. In: Religion,
education, recreation and health. NY: Springer-Verlag, 1992, v. IV.

14. Lara-Muñoz MC, Ponce de León S, de la Fuente JR. Conceptualización
y medición de la calidad de vida de pacientes con cáncer. Inv Clin
1995; 47 (4):315-27.

15. McSweeny J, Creer T. Health-related quality of life assessment in Medical Care. Dis-a-month jan 1995, VLI (1).

16. Campbell A,Converse PE, Rodgers WL. The quality of american life:
perceptions,evaluationand satisfaction.NY: Russell Sage, 1976.

17. Bell DR, Tannock IF, Body NF. Quality of life measurement in breast
cancer patients. British J Cancer 1985; 51:577-80.

18. Slevin ML, Plant H, Lynch D, et al. Who should measure quality of
life, the doctor or the patient? British J of cancer 1988; 57:
109-112.

19. Levi L, Anderson L. La tensión psicosocial. Población, ambiente y
calidad de la vida. México DF: El Manual Moderno, 1980.

20. Andrews FM, Withey SB. Social indicators of well-being. American's perceptions of life quality. NY: Plenum Press, 1976.

21. Szalai A. The meaning of comparative research on the quality of life. In: Szalai A, Andrews FM (Eds) The quality of life. Comparative Studies. London: Sage, 1976.

22. Wiklund I, Lindvall K, Swedberg K. Assessment of quality of life in
clinical trials. Acta Med Scand 1986; 220:1-3.

23. Celia DF, Tulsky DS. Measuring the quality of life today: methodological aspects. Oncology 1990; 4:29-38.

24. Van Knippenberg FCE, De Haes JCJM. Measuring the quality of life of cancer patients: psychometric properties of instruments. J Clin Epidemiol 1988; 41:1043-53.

25. De Haes JCJM, Van Knippenberg FCE. Quality of life instruments for cancerpatients: "Babel's tower revisited". J Clin Epidemiol 1989; 42:1239-41.

26. Kiebert GM, De Haes JCJM, Kievit J, et al. Effect of peri-operative
chemotherapy on the quality of life of patients with early breast
cancer. Eur J Cancer 1990; 26:1038-42.

27. Mor V. Cancer patient's quality of life over the disease course: lessons from the real world. J Chron Dis 1987; 40:535-44.

28. Chaturvedi SK. What's important for quality of life to Indians in relation to cancer? Soc Sci Med 1991; 33:91-4.

29. Cough IR, Dalgleish LI. What value is given to quality of life assessment by health proffesionals considering response to palliative chemotherapy for advanced cancer? Cancer 1991; 68:220-5.

30. Schmale AR, Morrow GR, Schmidt MH, et al. Well-being of cancer survivors. Psychosom Med 1983; 45:163-69.

31. Wood-Dauphynee S, Williams JI. Reintegration to normal living as a
proxy to quality of life. J of Chron Dis 1987; 40:491-9.

32. Bech P. Measurement of psychological distress and well-being. Psychotherapy&Psychosomatics 1990; 54:77-89.

33. Fayos JV, Beland F. An inquiry on the quality of life after curative treatment. In: Kager AR (Ed). Head and Neck Oncology: controversies in cancer treatment. Boston: Boston Hall, 1981, 99-109

34. Hörnsquit JO. The concept of quality of life. Scand J Soc Med 1982,
10:57-61.

35. Shaw A. Defining the quality of life. Hasting Center Rep, oct 1977,
11.

36.Harwood P. Quality of life. Ascriptive and testimonial conceptualizations. Soc Ind Res 1976; 3:471-496.

37. Liú BC.Quality of life indicators: a preliminary investigation. Soc
Ind Res 1974; 1:187-208.

38. Grau J. Calidad de vida y cuidados paliativos. Conferencia en la Maestría de Psicología de la Salud. Instituto Superior de Ciencias
Médicas de la Habana, 1994.

39. Kaplan RM. Behavior as the central outcome in health care. American
psychologist 1990; 45:1211-20.

40. Winefeld HR. Quality of life in chronic diseases. In: Proceedings of
the 8th Annual Conference of the European Health Psychology Society,
Univ. of Alicante, I, 286-303.

41. Wish NB. Are we really measuring quality of life? American J of Economics and Sociology 1986; 45 (1):93.

42. Lawton MP, Moss M, Fulcomer M, et al. A research and service oriented multileven assessment intrument. J of Gerontology 1982; 37:91-99.

43. Shin DC, Johnson DM. Avowed Happiness as an overall assessment of
the quality of life. Soc Ind Res 1978; 5:475-92.

44. De Haes JC, Van Knippenberg FCE. Quality of life of cancer patients:
review of the literature. In: Aaronson NK, Beckman J (Eds) The
quality of life of cancer patients. NY: Raven Press, 1987.

45. Grau J, Jiménez PJ, Chacón M, et al.Dolor y calidad de vida en
pacientesoncológicos preterminales. Reporte de investigación, INOR,
1995.

46. Bigelow DA, McFarland BH, Olson MM. Quality of life of community health program clients: validating a measure. Comm Mental Health Res 1991; 27:43-55.

47. Campbell A. Subjetive measures of well-being. American Psychologist 1976; 31:117-24.

48. Najman JM, Levine S. Evaluating the impact of medical care and
technologies in the quality of life: a review and critique. Soc Sci Med 1981; 15F:107-15.

49. Van Dam FSAM, Somers R, Van Beck-Couzijn AL. Quality of life: some theoretical issues. J Clin Pharmacol 1981; 21:1665-85.

50. Slevin ML, Plant H, Lynch D. Who should measure quality of life, the
doctor or the patient? British J of Cancer 1988; 57:109-12.
51. Gutek BA, Allen H, Tyler TR, et al. The importance of the internal
reference as determinant of satisfaction. J of Community Psychology
1983; 11:111-120.

52. Casas F. Indicadores psicosociales de riesgo en la infancia. Tesis doctoral inédita. Univ. de Barcelona, 1988.

53. Bradburn N. The structure and psychological well-being. Chicago:
Aldine, 1969.

54. Andrews FM, Mc Kennell A. Measures of self reported well-being: their affective, cognitive and other components. Soc Ind Res 1980;
8:127-55.

55. Hortley J, Little BR. Affective and cognitive components of global
subjective well-being measures. Soc Ind Res 1985; 17:113-33.

56. Organ DW, Near JP. Cognition or affect in measures of job satisfaction. Internat J of Psychology 1985; 20:241-53.

57. Zajonc RB. Feeling and thinking. Preferences need no inferences.
American psychologist 1980; 35:151-75.

58. Bower GH. Mood and memory. Psychology Today June 1981:60-9.

59. Schwarz N, Clare GL. Mood, missattribution and judgments ofwell-
being: informative and directive functions of affective states. J of
Personality and Soc Psychol 1983; 45:513-23.

60. Diener E. Subjective well-being. Psych Bull 1984; 9 (3):543-75.

61. Cummings LL, Schwab DP. Recursos humanos.México:Trillas, 1985.
62. Rice R, Mc Farlin D, Hunt R, Near J. Organizational work and perceived quality of life: toward a conceptual model. Academy of
Management Rev 1985; 10 (2):296-300.

63. Bandura A. Social foundations of trought and action. NY: Prentice Hall, 1983.

64. Bandura A. Human Agency in Social Cognitive Theory. American Psychologist 1989; 44 (9):1175-84.

65. Keller A. La medición de la calidad de vida en las Encuestas de Opinión Pública. En: Castañeda E (Ed) Calidad de vida y cambios:
Reformas institucionales y opinión pública. Papeles del I Seminario
sobre calidad de vida, organización social y opinión pública.
Caracas: nov 1986.

66. Fishbein M, Ajzen I. Understanding attitudes and predicting social
behavior. NY: Prentice Hall, 1980.

67. Bronfenbrenner U. The Ecology of Human Development. Cambridge: Harvard Univ Press, 1979.

68. Montero M. Fundamentos teóricos de la Psicología comunitaria en
Latinoamérica. Boletín AVEPSO 1982; 1:15-22.

69. Maes S, Bruil J. Assessing quality of life children with a chronic
disease. In: Proceedings of the 87h Annual Conference of the European Health Psychology Society. Univ. of Alicante, II, 637-52.

70. Flannagan JA. A research approach to improving our quality of life. American Psychologist 1978; 33:138-47.

71. Ware JE. Conceptualizing disease impact and treatment outcomes.
Cancer (suppl) 1984; 53:2316-23.

72. Hutchinson A, Farndon J, Wilson R. Quality of survival of patients
following mastectomy. Clin Oncol 1979; 5:391.

73. Lewis F. Experienced personal control and quality of life in late-
stage cancer patients. Nurs Res 1982; 31:113-19.

74. Stromborg M, Wright P. Ambulatory cancer patients perceptions of
the physical and psychosocial changes in their lives since the
diagnosis of cancer. Cancer Nurs 1984; 7:117-30.

75. Jenkins CD, Jono RT, Stanton B, Stroup-Benham CA. The measurement of
health related quality of life. Major dimensions identified by
factor analysis. Soc Sci Med 1990, 31:925-31.

76. Patrick DL, Bergner M. Measurement of health status in the 1990s.
Annual Review of Public Health 1990; 11:165-83.

77. Torrance GH. Utility approach to measuring health-related quality of
life. J Chronic Dis 1987; 40 (6):593-600.

78. Horley J. Life satisfaction, happiness and morale:two problems with
theuse of subjective well-being indicators. The Gerontologist 1984;
24:124-27.

79. Feinstein AR. Clinimetrics. New Haven: Yale Univ Press, 1987.

80. Kaplan RM, Bush JW, Berry CC. Health status: types of validity and
the index of well-being. Health Services Res 1976; 11 (4):478-507.

81. Gill TM, Feinstein AR. A critical appraisal of the quality of Quality-of-life Measurements. JAMA 1994; 272 (8):619-25.

82. Blanco A, Chacón F. La evaluación de la calidad de vida. En: Morales
JF (Comp). Psicología social aplicada. Bilbao: DDB, 1985.

83. Bowling A. Measuring health: a review of quality of life measurement
scales. Open Univ Press, 1992.
84. Grau J. Calidad de vida y salud: problemas en su investigación. Conferencia magistral en la II Conferencia Internacional de Psicología de la Salud (PSICOSALUD'96), Palacio de Convenciones, Ciudad de la habana, oct 1996.

85. GrauJ. Calidad de vida y salud. Conferencia magistral en el III Encuentro de la Sociedad de Psicología de la Salud de Venezuela, Caracas, febrero de 1997.

86. Lolas F. Biomedicina y calidad de vida: análisis teórico. Acta Psiquiat Psicol Amer Lat 1991; 37:25-30.

87. Ware JE, Brook RH, Davies AR, et al. Chosing measures for health status for individuals in general populations. Sta. Mónica: RAND Corporation, 1981.

88. Kaplan RM. Quality of life measurement. In: Karoly P (Comp)
Measurement strategies on health psychology. NY: Wiley, 1985.

89. Andrews FM, Robinson JP. Measures ob subjetive well-being. In: Robinson JP, Shavor ER, Wrightsman L (Comps) Measures of personality
and social psychological attitudes. NY: Acad Press, 1991.

90. Okun MA, Stock WA. The construct validity of subjective well-being
measures: an assessment vs quantitative research synthesis. J of
Community Psychology 1987; 15:481-93.

91. Hox J. Het hebruik van hulptheorieen by operationalisering (Using
auxiliarytheories for operationalization: a study of the construct
subjective well-being). Doctoral thesis. Univ. of Amsterdam, 1986.

92. Argyle M, Martin M, Crossland J. Happiness as a function of personality and social encounters. In: Forgas JP, Innes JM (Comps) Recent advances in social psychology: an international perspective.
North Holland: Elsevier, 1989.

93. Argyle M. La Psicología de la Felicidad. Madrid: Alianza, 1992.

94. Reikowski Ya. Psicología experimental de las emociones. Moscú: Progreso, 1979 (trad. al ruso del polaco).

95. Kleban MH, Lawton MP. Psychological well-being in the aged: factorial and conceptual dimensions. Filadelfia: Geriatric Center, 1982.

96. Veenhoven R. Conditions of happiness. La Haya: Martinies Nijhoff, 1984.

97. Davis JA. New money and old man/lady and two's company: subjetive
welfare in the NORC General Social Surveys, 1972-1982. Soc Ind Res 1984; 15:319-50.

98. Gallup GH. Human needsand satisfaction: a global survey. Public
Opinion Quarterly 1976; 40:459-67.
99. Costa PT, Mc Crae RR. Influence of extraversion and neuroticism on
subjective well-being: happy and un-happy people. J of Personality
and Social Psychology 1980; 38:668-78.

100. Smith TW. Happiness: time trends, seasonal variations, inter-
survey differences and other mysteries. Soc Psych Quarterly 1979;
42:18-30.

101. Dupuy HJ. Self representations of general psychological well-being
of american adults. Paper to American Public Health Association
Meeting, Los Angeles, 1978.

102. Neugarten CL, Havighurst RJ, Tobin S. The measurement of life
satisfaction. J of Gerontology 1961; 16:134-43.

103. Grau J. Personalidad, salud y enfermedad. Conferencia en la Maestría en Psicología de la Salud, Instituto Superior de Ciencias Médicas de la Habana, 1994.

104. Spitzer WO. State of science 1986: quality of life and functional
status as target variables for research. J Chron Dis 1987; 40:465-
71.

105. Grau J. El enfoque transaccional en el estudio del estrés. Conferencia en la Maestría en Psicología de la Salud. Instituto Superior de Ciencias Médicas de la Habana, 1994.

106. Goldstein MS, Siegel JM, Boyer R. Predicting chances in perceived
health status. American J of Public Health 1984; 74:611-15.

107. Kaplan GA, Camacho T. Perceived health and morality: a nine-year
follow-up of the human population laboratory cohort. Am J of
Epidemiology 1983; 117:292-98.

108. Kaplan RM. New health promotion indicators: the general health
policy model. Health promotion 1988; 3:35-48.

109. Goldberg DP. Manual of the General Health Questionnaire. Windsor: NEFR-Nelson, 1978.

110. Brodman K, Erdmann AJ, Wolff HG. Cornell Medical Index health
questionnaire. NY: Cornell University Medical College, 1949.

111. Penzo W. Aspectos psicológicos del dolor crónico. Barcelona:
Martínez Roca, 1989.

112. Martin M, Grau J. Psicología y dolor crónico. Impresiones ligeras, Universidad de Guadalajara, 1992.

113. Martin M, Grau J. Aspectos psicológicos del dolor crónico. Problemas,métodos y perspectivas. Impreiones ligeras, Universidad Autónoma de Sinaloa, 1995.

114. Bergner M, Robbitt RA, Kressell S, et al. The Sickness Impact
Profile:conceptual formulation and methodology for the development
of a health status measure. Internat J of Health Services 1976; 6:
393-415.

115. Bergner M, Robbitt RA, Carter WB, et al. The Sickness Impact
Profile. Development and final revision of a health status measure.
Med Care 1981; 19 (8):787-805.

116. Hunt SM, McEwan J, McKenna SP. Perceived health: age and sex
comparison in a community. J of Epidemiology and Community Health
1984; 34:281-286.

117. Gurel L, Linn MW, Linn BS. Physical and mental impairment or
function evaluation inthe aged: the PAMIE Scale. Jof Gerontology
1972; 27:83.

118. Pilowsky I, Spence ND. Manual for the Illness behavior
questionnaire (IBQ) (2nd. ed.). Adelaide: Univ. of Adelaide, 1983.

119. Grau J, Martin M. Cuadro interno de las enfermedades crónicas:
resultados de las investigaciones efectuadas en el Hosp. C.Q."Hnos.
Ameijeiras". Ponencia al I Encuentro Cuba-México, HCQHA, 1990.

120. Wilkin D. Conceptual problems in dependency research. Soc Sci Med
1987; 24:867-75.

121. Karnofsky D, Burchenal J. The clinical evaluation of chemotherapy
agents in cancer. In: MacLeod CM (Ed) Evaluation of
chemotherapeutics agents. NY: Columbia Press, 1949, 191-205.

122. Katz MM, Lyerly SB. Methods for measuring adjustment and social
behavior in the community, I. Rationale, description,
discriminative validity and scale development. Psych Reports 1963;
13:503-35.

123. Fanshel S, Bush JW. A health status index and its application to health services outcomes. Operation research 1970, 18: 1021-66.

124. Guyatt GH, Veldhuysen Van Zanten SJO, Feeny DH, et al. Measuring quality of life in clinical trials: a taxonomy and review. Can Med Assoc 1989; 140:1441-48.

125. Read JL, Quinn RJ, Hoefer MA. Measuring overall health: an
evaluation of three important approaches. J Chron Dis 1987; 40 (suppl 1):75-215.

126. McKenzie CR, Charlson ME, DiGioia D, et al. A patient-specific
measure of change in maximal function. Arch Intern Med 1986; 146: 1325-29.

127. Guzmán J, Ponce S, Pita L, et al. El cambio en la calidad de vida
como indicador de curso clínico de la enfermedad. Comparación de dos índices. Invest Clin 1993; 45 (5):439-52.

128. Taylor SR, Aspinwall LG. Psychological aspects of chronic illness.
In: Costa PT, VandenBos SR (Eds) Psychological aspects of serious
illness: Chronic conditions, fatal disease and clinical care, APA,
1990.

129. Nikolaeva VV. La personalidad en las condiciones de la enfermedad
somática crónica. Tesis doctoral, Univ Estatal de Moscú, 1992 (en
ruso).

130. GrauJ, Portero D. Perspectivas del estudio del cuadro interno en
las enfermedades. Rev Cubana de Psicología 1984; 1 (3):53-62.

131. Lazarus RS, Folkman S. Stress, apraisal and coping. NY: Springer,
1984.

132. Taylor SR, Aspinwall LG. Coping in chronic illness. In: Goldberger
H, Berhnitz S (Eds) Handbook of stress. MacMillan Co, 1993.

133. Dünkel-Schetter C. Social support and cancer. Findings based on patients interviews and their implications. J of Soc Issues 1984; 40:77-98.

134. Van Elderen T. Quality of life in patients with cancer, CNSLD, coronary heart disease and diabetes mellitus: a review of research in The Netherlands. In: Proceedings of the 87h Annual Conference of
the European Health Psychology Society, Univ of Alicante, II, 1995,
356-73.

135. Kaplan RM, Bush JW. Health related quality of life measurementfor
evaluation research andpolicy analysis. Health Psychology 1982; 1:
61-80.

136. Morris J, Suissa S, Sherwood S, et al. Last days: a study of the
quality of life of terminally ill cancer patients. J Chronic Dis 1986; 34:47-62.

137. Padilla G, Present C, Grant M, et al. Quality of life index for
patients with cancer. Res Nurs Health 1983; 6:117-126.

138. Padilla G, Grant M. Quality of life as a cancer nursing outcome
variable. Adr Nurs Sci 1985; 7:45-60.

139. Jenkins D. Psicología de la Salud y enfermedades cardiovasculares:
resultados de las investigaciones conducidas en los últimos años. Conferencia magistral en la Facultad de Ciencias Médicas "Calixto Garcia", Instituto Superior de Ciencias Médicas de la Habana, abril
1997.

140. Sarno JE, Sarno MT, Levita E. The functional life scale. Archives
of physical medicine and rehabilitation 1973; 54:214-20.

141. Winefeld HR, Cormack SM. Regular activities as indicators of
subjective health status. Int J of Reh Res 1986; 9:47-52.

142. Goldberg DP. The detection of psychiatric illness by questionnaire.
London: Oxford Univ Press, 1972.
143. Ware JE, BrockR, Davies-Avery A, et al. Conceptualization and
measurement of health for adults in the health insurance study, 6,
Analysis of relationships among health status measures. R1987/6 HEW. Sta. Mónica: RAND Corporation, 1980.

144.Ware JE. Standards for validating health measures: definition and content. J Chron Dis 1987; 40:473-80.

145. Stewart AL, Hays RD, Ware JE. The MOS short-form general health
survey. Med Care 1988; 26:724-35.

146. Parkerson GR, Broadhead WE, Tse CKJ. The Duke Health Profile: a 178
item measure of health and dysfunction. Med Care 1990; 28:1056-72.

147. Clark A, Fallowfield LJ. Quality of life measurements in patients with malignant disease. J of the Royal Soc Med 1988;76: 165-69.

148. Ganz PA, Schag CAC, Lee JJ, et al. The CARES: a generic measure of
health related quality of life for patients with cancer. Quality of
Life Res 1992; 1:19-29.

149. Eiser Ch. Choices in measurement of quality of life in cancer
children. Psychooncology 1995; 4:121-31.

150. Schag CAC, Ganz PA, Kahn B, et al. Assessing the needsand
quality of life of patients with HIV infection: development of the
HIVOperview of Problems-Evaluation System (HOPES). Quality of Life
Res 1992; 1:397-413.

151.Wu AW, Rubin HA, Mathews WC, et al. A health status questionnaire using 30 items from the Medical Outcomes Study. Med Care 1991; 29: 786-98.

152. Cleary PD, Fowler FJ, Weissman J, et al. Health-related quality of life in persons with AIDS. Med Care (in press, 1995).

153. Lubeck DP, Fries JF. Health status among persons with HIV infection: a community-based study. Paper presented at the HIV-AIDS
Health Services and Delivery Conference. Miami, december 1991.

154. Berry SH, Bozzette SA, Hays R, et al. Measuring health status in advanced HIV disease. Paper presented at the Seventh International Conference on AIDS, Florence, june 1991.

155. Hays RD, Shapiro MF. An overview of generic health-related quality
of life measures for HIV research. Qual Life Res 1992; 1:91-7.

156. Jacoby A. Epilepsy and the quality of every day life. Soc Sci Med
1992; 34:657-66.

157. Meenam RF, Gertman P, Mason JH. The Arthritis impact in measurement
scales; further investigations of a health status measure.
Arthritis and Rheumatology 1982; 25:1048-53.
158. WarnerR, Huxley P. Psychopathology and quality of life among
mentally ill patients in the community. British and U.S. samples
compared. Brit J of Psychiatry 1993; 163:505-9.

159. Hyland ME, Finnis S, Irvine SH. A scale for assessing quality of life in adult asthma sufferers. J Psychosom Res 1991; 35:99-110.

160. Juniper EF, Guyatt GH, Ferrie PJ, et al. Measuring quality of life
in asthma. Am Rev Respir Dis 1993; 147 (suppl):832-8.

161. Marks GB, Dunn SM, Woolcock AJ. A scale for the measurement of quality of life in adults with asthma. J Clin Epidemiol 1992; 45: 461-72.

162. Cook DJ, Guyatt GH, Juniper E, et al. Interviewer versus self- administered in developing a disease-specific, health-related quality of life instrument for asthma. J Clin Epidemiol 1993; 46:
529-34.

163. Christie MJ, French D, Sowden A, et al. Development of child- centered disease-specific questionnaires for living with asthma. Psychosom Med 1993; 51:541-8.

164. Fritz GK, Overholser JC. Patterns of response to childhood asthma.
Psychosom Med 1989; 51:347-55.

165. Creer TL, Wigal JK, Kotses H, et al. A life activities questionnaires for adult asthma. J Asthma 1992; 29:393-9.

166. Creer TL, Wigal JK, Kotses H, et al. A life activities questionnaires for childhood asthma. J Asthma 1993; 30:467-73.

167. Creer TL. Psychological and behavioral assessment of childhood asthma. Part II. Behavioral approaches. Pediatr Asthma Allergy Inmunol 1992; 6:21-34.

168. Bousquet J, Knani J, Dhibert H, et al. Quality of life in asthma. 1. Internal consistency and validity of the SF-36 Questionnaire. Am
J Respir Crit Care Med 1994; 149:371-5.

169. Rowe BH, Oxman AD. Perfomance of an asthma quality of life questionnaire in an outpatient setting. Am Rev Respir Dis 1993; 148:675-81.

170. Jones PW. The Nedocromil Sodium Quality of Life Study Group. Quality of life, symptoms and pulmonary functioning in asthma: long-term treatment with nedocromil sodium examined in a controlled
multicentre trial. Eur Respir J 1994; 7:55-62.

171. Malo JL, Boulet LP, Dewitte JD, et al. Quality of life of subjects with occupational asthma. J Allergy Clin Inmunol 1993; 91:1121-7.

172. Jones PW, Quirk FH, Baveystock CM, et al. A self-completed measure
of health status for chronic airflow limitation. Am Rev Respir Dis 1992; 145:1321-7.
173. Maille AR, Koning CJM, Kaptein AA. Developing a quality of life questionnaire for patients with respiratory illness. Qual of Life
Newsletter 1993; 6:5.

174. Guyatt GH, Berman LB, Townsend M, et al. A measure of quality of
life for clinical trials in chronic lung disease. Thorax 1987; 42:
773-8.

175. Schrier AC, Dekker FW, Kaptein AA, et al. Quality of life in
elderly patients with chronic non-specific lung disease seen in family practice. Chest 1990; 98:894-9.

176. Kaptein AA, Brand PLP, Dekker FW, et al. Quality of life in a long-
term multicentre trial in chronic nonspecific lung disease: assessment at baseline. Eur Respir J 1993; 6:1479-84.

177. Jones PW, Quirk FW, Baveystock CM. The St. George's Respiratory Questionnaire. Respir Med 1991; 85:25-31.

178. Grant I, Heaton RK, McSweeny AJ, et al. Neuropsychologic findings
in hypoxemic chronic obstructive pulmonary disease. Arch Internal Med 1982; 143:1941-7.

179. Labuhn KT. An Analysis of self-reported depressed mood in chronic obstructive pulmonary disease (dissertation). (Ann Arbor: University of Michigan, 1984). Dissertation Abstracts International
1984; 45:524B.

180. Mc Sweeny AJ, Labuhn KT. Chronic obstructive pulmonary disease. In: Spilker B. (Ed) Quality of life assessment in clinical trials.
NY: Raven, 1990, 391-418.

181. Wasson J, Keller A, Rubenstein L, et al. Benefits and obstacles of
health status assessment in ambulatory settings: the clinician's point of view. Med Care 1992; 30 (suppl):MS42-9.

182. Bridges-Webb C. Assessing health problems in general practice. Med
J Aust 1992; 157:321-5.

183. Offerhaus L. Measurement of quality of life in clinical trials: in
pursuit of the unapproachable? Eur J Clin Pharmacol 1991; 40:205-
208.

184. Fossa SD, Aaronson NK, Hewling D, et al. Quality of life in treatment of hormone resistant metastatic aprotatic cancer. Brit J
Cancer 1990; 26:1133-36.

185. Schipper H, Levitt M. Measuring quality of life: risks and benefits. Cancer Trat Rep 1985; 69:1115-23.

186.Grau J, Lence J, Jiménez PJ, et al. Calidad de vida y calidad de
muerte: la atención psicológica al paciente oncológico en el marco
de los cuidados paliativos. Premisas de un proyecto cubano. Psicología y Salud, IIP de la Univ. Veracruzana, en-jun. 1995:
111-25.
187.Bejarano P, De Jaramillo IF. Morir con dignidad. Fundamentos del Cuidado Paliativo. Santafé de Bogotá: Lab Italmex, 1992.

188. Jiménez PJ, Grau J, Noriega P, et al. Tratamiento paliativo con
enfoque multidisciplinario en pacientes oncológicos en estadío
terminal. Rep. de investigación, INOR, 1994.

189. BarretoP, BayésR. El psicólogo ante el enfermo en situación
terminal. Anales de Psicología 1990; 6 (2):160-80.

190. Bayés R, Barreto P. Las unidades de cuidados paliativos como
ejemplo de interdisciplinariedad. Clínica y Salud 1992; 3 (1):
11-9.

191. Twycross R. Care of the patient with advanced cancer. Oxford:
Sobell House Study Center, 1990.

192. Toledo M, Martinez E, Barreto P, et al. The quality of life of terminally ill patients. In: Proceedings of the 8th Annual Conference of the European Health Psychology Society, Univ of Alicante, I, 130-6.

193. Limonero JT, Bayés R. Bienestar en el ámbito de los enfermos en situación terminal. Med Paliativa 1995: 2(2):5-11.

194. Arraras JL, Wright SJ, Ahmedzal S. Progresos en la medición de la
calidad de vida en cuidados paliativos. In: Proceedings of the 8th
Annual Conference of the European Health Psychology Society, Univ
of Alicante, I, 627-36.

195. Ahmedzal S. Quality of Life measurement in Palliative Care: phylosophy, science or pontification? Progress in Palliative Care
1993; 1 (1):6-10.

196. Ahmedzal S. Quality of Life research in The European Palliative Care Setting. In: Osoba D (Ed) Effect of cancer on Quality of Life.
Boca Ratón: CRC Press, 1991.

197. Gomez M. Cuidados Paliativos e intervención psicosocial en enfermos terminales (1a ed). Las Palmas: ICEPSS, Las Palmas, 1994.

198. MINSAP. Programa cubano de Atención al Dolor y Cuidados Paliativos.
Impresiones ligeras, inor, 1996.

199. Font A. Valoración de la calidad de vida en pacientes con cáncer.
Tesis doctoral, Univ Autónoma de Barcelona, Bellaterra, 1988.

200. Grau J, Chacón M, Jiménez PJ, et al. Eficacia de los cuidados
paliativos en la calidad de vida de pacientes oncológicos. Una
experiencia enlaatención primaria: pilotaje en tres áreas de salud
de la ciudad de la Habana. Reporte de investigación, INOR, 1995.

201. Chacón M, Grau J, Grau R, et al. Confección y validación de un sistema de instrumentos para evaluar calidad de vida percibida en niños con cáncer y reportada por padres y médicos: el SECVPR. Reporte de investigación, INOR, 1996.

202. John C, Schwenk TL, Roi LD, et al. Medical care and demographic
characteristics of "difficult" patients. J of Fam Practice 1987;
24:607-10.

203. O'DownTC. Five years of heartsink patients in general practice.
British Med J 1988; 297:528-32.

204. Schwenk TL, Marquez JT, Lefever D, et al. Physician and patient
determinants of difficult physician-patient relationships. J of
Family practice 1989; 28:59-63.

205. Sharpe M, Mayon R, Scagroatt V, et al. Why do doctors find some
patients difficult to help? Quarterly J of Med 1994; 87:187-93.

206. Grau J. El Entrenamiento en Habilidades Sociales y Comunicativas
en el equipo de cuidados paliativos. Cuadernos de Psicología de la
Salud "Higía", UAS, 1996.
207. Maslach C, Jackson S. The measurement of experienced burnout. J of
Occupational Behavior 1981; 2:99-113.

208. Cherniss C. Proffessional burnout service organization. NY:
Praeger, 1980.

209. Moreno B, Oliver C, Aragonés A. El burnout: una forma específica
de estrés. En: Buela-Casal G, Caballo VE (Eds) Manual de
Psicología Clínica Aplicada. Madrid: Siglo XXI, 1991.

210. Chacón M. El burnout en personal de enfermería. Ponencia al Congreso Internacional de Dolor y Cuidados Paliativos, Puerto
Vallarta, 1995.

211. Grau J, Hernández L, Chacón M, Romero T, Jiménez PJ. El burnout en
médicos y enfermeras del Instituto de Oncologíay Radiobiología.
Reporte de investigación, INOR, 1996.

212. Chacón M. El rol de la enfermera en la atención al dolor y los cuidados paliativos. Ponencia al Congreso Internacional de Dolor y
Cuidados Paliativos, Puerto Vallarta, 1995.

213. Carpenter K. Le soutien de l'equipe en soins palliatifs. Centre de
Documentation Fonds Wilmers, CESCO, Ginebra, 311.

214. Winefeld HR, Harvey EJ. Determinants of psychological distress in
relatives of people with chronic schizopherenia. Schiz Bull 1993;
19:619-25.

215. Sullivan SD, Weiss KS. Assessing cost-effectiveness in asthma care: building an economic model to study the impact of alternative
intervention strategies. Allergy 1993; 48:146-52.

216. Torrance GH. Health status index models: a unified mathematical
view. Management Sci 1976; 22:99-101.

217. Jones MB. Health status indexes. The trade-off between quantity
and quality of life. Socio-Econ Plan Sci 1977; 11:301-5.

218. Pliskin JS, Shepard DS, Weinstein MC. Utility functions for life
years and health status. Oper Res 1980; 28:206-24.

219. Weinstein MC, Stason WB. Foundations of cost-effectivness analysis
for health and medical practices. N Engl JMed 1977; 296:716-22.

220. Weinstein MC. Economic assessment of medical practices and
technologies. Med Decis Making 1980; 303:308-16.

221. Kaplan RM. Quality of life assessment for cost/utility studies
in cancer. Cancer Treatment Reviews 1993; 19 (suppl A):85-96.

222. Torrance GH. Measurement of health state utilities for economical
appraisal. A review. J Health Economics 1986; 5:1-30.

223. Holloway CA. Decision making under uncertainly: models and choices.
Englewood Cliffs. NJ: Prentice Hall, 1979.

224. Faden R, Le Plege A. Assessingqualityof life: moral implications
for clinical practice. Med Care 1992; 30 (suppl): MS166-75.

225. Kerner D, Patterson TL, Kaplan RM. Validity of the Quality of Well-
Being Scale in Alzheimer's disease, 1994 (in press).

226. Kaplan RM. Application of a general health policy model in the
American health care crisis. J of the Royal Society of Medicine
1993; 86:277-281.

227. Kaplan RM. Hippocratic Predicament: Affordability, Access and
Accountability in Health Care. S Diego: Acad Press, 1993.

228. Kaplan RM. Health-related quality of life assessment: a basic
science for the twenty-first century. In: Proceedings of the
European Health Psychology Society, Univ of Alicante, II, 1995,
596-619.

229. Kaplan RM, Anderson JP. A general health policy model: update and
applications. Health Services Res 1988; 23:203-204.

230. Kaplan RM, Anderson JP. The QWB Scale: rationale for a single
Quality of life index. In: Walker SR, Rosser R(Eds) Quality of
life: assessment and application. London: MTP Press, 1988, 51-77.

231. Kaplan RM, Bush JW, Berry CC. The reliability, stability and
generalizability of a health status index. American Statistical
Association. In: Proceedings of the Soc Status Section, 1978,
704-9.

232. Kaplan RM, Bush JW, Berry CC. Health Status Index: category rating
vs. magnitude estimation for measuring levels of well-being. Med
Care 1979; 17 (5):501-525.
233. KaplanRM, AndersonJP, Wu AW, et al. The QWB Scale: applications
inAIDS, Cystic fibrosis, andarthritis. Med Care 1989; 27(suppl 3):
S27-S43.

234. Kaplan RM, Atkins CJ, Timms R. Validity of a quality of well-
being scale as an outcome measure in chronic obstructive pulmonary
disease. J of Chronic Dis 1984; 37 (2):85-95.

235.Kaplan RM, Kozin F, Anderson JP. Measuring quality of life in
arthritis patients (including discussion of a general health
decision model). Quality of Life and Cardiovascular Care 1988: 4,
131-9.

236. Kaplan RM, Anderson JP, Patterson T, et al. Validity of the QWB
Scale for persons with HIV infection. Psychos Med 1995 (in press).

237. Bayés R. Psicología oncológica (2da ed) Barcelona: Mtnez Roca, 1991
238. Bardelli D, Saracci R. Methods and impact of controlled
therapeutics trials in cancer. UICC Techn Rep Ser 1978; 36:75-97.

239. Greer S. The psychosocial dimension in cancer treatment. Soc Sci Med 1984; 4:345-9.

240. Schraub S, Mercier M, Orgerie MB. Quality of life. In: Cvitrovic E, Dzo JP, Armand JP, Khoury S (Eds). Handbook of chemotherapy in
Clinical Oncology. Besancon: Rhone-Poulenc Rorer, 1993, 493-8.

241. Craig TJ, Comstock GW, Geiser PB. The quality of survival in
breast cancer: a case control comparison. Cancer 1974; 33:1451-57.

242. Bunge M. What is quality of life indicators? Soc Ind Res 1975; 2:65-79.

243. Gilbert H, Kagan AR, Nussbaum H, et al. Evaluation of radiation
therapy for bone metastases: pain relief and quality of life. AJR
1977; 129:1095-6.

244. Anthony HM, Madsen KE, Mason MK, et al. A stratified randomized
study of the intradermal BCG in patients with carcinoma of the
bronchus: prolongation of quality but not lenght of life in
inoperable patients. Cancer 1978; 42:1784-92.

245. Edelstyn GA, MacRae K, Mac Donald F. Improvement of life quality in
cancer patients undergoing chemotherapy. Clin Oncol 1979; 5:43-9.

246. Schipper H, Clinch J, Mc Murray A, et al. Measuring the quality of
life of cancer: the Functional Living Index Cancer. Development
and validation. J Clin Oncol 1984; 2:472-83.

247. Leibel SA, Pino y Torres JL, Order SE. Improved quality of life
following radical radiation therapy for early stage carcinoma of
the prostate. Urol Clin North Am 1980; 7:593-604.

248.Schraub S, Bransfield DD. Comparison of three methods to measure quality of life. In: Aaronson NK, Beckman J (Eds) The Quality of
Life of cancer patients. NY: Raven Press, 1987, 83-92.

249. Irwin PH, Gottlieb A, Kramer S, et al. Quality of life after
radiation therapy: a study of 309 cancer survivors. Soc Ind Res 1982; 10:187-210.

250. Trew M, Maguire GP. Further comparison of two instruments for
measuring quality of life in cancer patients. In: Proceedings of
the Third EORTC Workshop on quality of life, Paris, 1982.

251. Cassileth BR, Lusk EJ, Tenaglia AN. A psychological comparison of
patients with malignant melanoma and other dermatological
disorders. Am Acad Dermatol 1982; 7:742-6.

252. Linssen ACG, Hanewald GJFP, Huisman S, et al. The development of
a well-being (quality of life) questionnaire at the Neetherlands
Cancer Institute. In: Proceedings of the Third EORTC Workshop on
Quality of life, Paris, 1982.

253. Gough IR, Furnival CM, Schilder L, et al. Assessment of the quality
of life of patients with advanced cancer. Eur J Cancer Clin Oncol 1983; 8:1161-5.

254. Meyerowitz BE. Psychological correlates of breast cancer and its
treatments. Psychol Bull 1980; 87:108-31.

255. Priestman TJ, Baum M, Priestman S. The quality of life in breast
cancer patients. In: Proceedings of the First EORTC Workshop on
Quality of life, Amsterdam, 1981.

256. Bernheim JC, Buyse M. Amnestic comparative self-assessment, a
method to measure the subjetive quality of life of cancer patients.
J Psychosoc Oncol 1983;, 4:25-38.

257. Aaronson NK, Bakker W, Stewart AL, et al. A multidimensional
approach to the measurement of quality of life in lung cancer
trials. In: Proceedings from the Workshop EORTC, Study Group on
Quality of Life, Zurich, 1984.

258. Aaronson NK, Beckman JH. The quality of life of the cancer
patients. NY: Raven Press, 1987.

259. Ibañez E, Andreu Y. Calidad de vida y Psicología oncológica.
Anuario de Psicología 1988; 38:7-21.

260. Burish TG. Progress in psychosocial and behavioral cancer research:
the need for enabling strategies. Cancer 1991; 67:860-4.

261. Thompson L, Andersen BL, De Petrillo D. The psychological
process of recovery from gynecologic cancer. In: Coppleson M,
Morrow G, Tattersal M (Eds) Gynecologic oncology (2d ed).
Edimburg: Churchill Livingstone, 1992, 1499-1505.

262. Andersen BL. Psychological interventions for cancer patients to
enhance the quality of life. J Cons Clin Psychol 1992; 60 (4):552- 68.

263. Grau J, Martin M, Jiménez PJ, et al. Las contribuciones de la
Psicología al tratamiento del dolor por cáncer. Ponencia al II
Congreso Colombiano de Psicologíade la Salud, Calí, oct 1993.

264. De Haes J, Pruyn JF, Van Kinppenberg FC. Klachtenlijst voor
kankerpatienten, ecaste ervalingen. Ned Tijdschr Psychol 1983; 38:
403-22.

265. Sugerbaker PH, Barofsky I, Rosemberg GA, et al. Quality of life
assessment of patients in extremity sarcoma clinical trials.
Surgery 1982; 91:17-23.

266.Maguire GP. Monitering the quality of life in cancer patients and
their relatives. In: Syminton P (Ed) Cancer assessment and
monitoring. NY: Churchill Livingstone, 1980.

267. Spitzer WD, Dobson AJ, Hall J, et al. Measuring quality of life of
cancer patients: a concised Q.I.-Index for use the physicians. J
Chron Dis 1981; 34:585-97.

268. Astudillo W, Mendinueta C, Astudillo E. Evaluación médica del paciente terminal. En: Astudillo W, Mendinueta C, Astudillo E (Comps) Cuidados del enfermo en fase terminal y atención a su
familia. Univ de Navarra, SA, Pamplona, 1995, 37-41.

269. Katz S, et al. Studies of illness in the aged: The Index of ADL,
JAMA 1986; 185:94.

270. Maguire P. Psychological reactionstobreastcancer, diagnosis and
management. NY: Wiley, 1984.

271. Mosley JG. Palliation in malignant disease. Edimburg: Churchill
Livingstone, 1988, 1-11.

272. Goldberg DP, Bridges K, Ducan-Jones P, et al. Detecting anxiety
and depression in general setting. BMJ 1988; 297:897-9.

273. Schag CAC, Heinrich RL, Ganz PA. Cancer inventory of problem
situation: an instrument for assessing cancer patients. J Psychos Oncol 1983; 1:4.

274. Miller RD. Psychosocial aspects of palliative care in advanced
cancer. J Pain Symptom Management 1991; 6:24-9.

275. Priestman TJ, Baum M. Evaluation of quality of life in patients
receiving treatment for advanced breast cancer. Lancet 1976; 1:899
-200.

276. Spilker B. Quality of life assessments in clinical trials. NY: Raven Press, 1990.

277. Aaronson NK, Bullinger M, Ahmedzai SA. A modular approach to
quality of life assessment in Center Clinical trials. Recent
Results Cancer Res 1988; 111:231-49.

278. Presant C, Klahr C, Hogan L. Evaluating quality of life in oncology
patients. Pilot observations. Oncol Nurs Fom 1981; 8:26-30.

279. Cruzado JA, Olivares ME, Fernández B. Evaluación y tratamiento
psicológico en pacientes de cáncer de mama. En: Intervención
psicológica: programas aplicados de tratamiento. Madrid: Pirámide,
1991.

280. Levine MH, Guyatt GH, Gent M, et al. Quality of life in stage II
breast cancer: an instrument for clinical trials. J Clin Oncol
1988; 6 (12):1788-1810.

281. Finkelstein DM, Cassileth GP, et al. A pilot study of the
Functional Living Index Cancer (FLIC) Scale for the assessmentof quality of life metastatic lung cancer patients. Am J Clin Oncol 1988; 2 (6):630-33.

282. Rachavan D, Greendy R, Lancaster L. Assessment of quality of life
in long-term survivors treated by first-line intravenous cisplatin
forinvasive bladder cancer. Progress in clinical and biological
research 1988; 260:625-31.

283. Irvine DM, Brown B. Psychosocial adjustment in women with breast cancer. Cancer 1991; 67:1097-1117.

284. Kemeny MM, Wellisch DK. Psychosocial outcome in a randomized surgical trial for treatment of primary breast cancer. Cancer 1988; 62:1231-7.

285. Wolberg WH, et al. Psychosexual adaptation to breast cancer surgery. Cancer 1989; 63:1645-55.

286. Coates A, et al. Improving the quality of life during chemotherapy
for advanced breast cancer. A comparison of intermittent and continuous treatment strategies. N Eng J Med 1987; 317:1490-5

287. Mercier M, Schraub S, et al. Parient acceptance and differential
perception of quality of life measures in a french oncology setting. Quality of Life Res 1992; 1:53-61.

288. Elleman R, et al. Psychiatric morbidity associated with screening
for breast cancer. Br J Cancer 1989; 60:781-784.

289. Greaves-Otte JGW, et al. Problems of social reintegration of long-
term cancer survivors. Eur J Cancer 1991; 27 (2):178-181.

290. Greer S, Moorey S, Baruch J. Evaluation of adjuvant psychological
therapy for clinically referred cancer patients. Br J Cancer 1991;
63:257-260.

291. Bindemann S, Soukop M. Radomized controlled study of relaxation training. Eur J Cancer 1991; 27:170-174.
292. Gelber RD, Goldhirsch A. For the Ludwig Breast Cancer Study Group.
A new endpoint for the assessment of adjuvant therapy in postmenopausal women with operable breast cancer. J Clin Oncol 1986; 4:1772-9.

293. Gelber RD, Gelman RS. A quality-of-life-oriented endpoint for comparison therapies. Biometrics 1989; 45:781-95.

294. Gelber RD. For the International Breast Cancer Study Group. Quality of Life adjusted evaluation of adjuvant therapies for operable breast cancer. Annals of Int Med 1991; 114: 621-8.

295. Goldhirsch A, et al. A for the Ludwig Breast Cancer Study Group. Costs and benefits of adjuvant therapy in breast cancer: a quality- adjusted survival analysis. J Clin Oncol 1989; 7:36-44.

296. Meyerowitz BE, Watkin IK, Sparks FC. Quality of life for breast
cancer patients receiving adjuvant chemotherapy. Am J Nurs 1983; 2:
232-235.

297. Johnston M. The quality of life. In: Proceedings of the 8th.
Annual Conference of the European Health Psychology Society, Univ
of Alicante, I, 1995, 13-7.


CALIDAD DE VIDA Y SALUD:
PROBLEMAS EN SU INVESTIGACION

JORGE A. GRAU ABALO
FACULTAD DE CIENCIAS MEDICAS "CALIXTO GARCIA"
INSTITUTO SUPERIOR DE CIENCIAS MEDICAS DE LA HABANA

ALAPSA

1